A Fun Run Benefiting Children with Peroxisomal Disorders
June 8, 2014
(Registration opens February 14)
7:45 am On-site registration/Check-in/Packet pick-up opens
8:45 am Announcements and Introduction of Race Honoree Livi Menard
9:00 am Race begins
5K Loop Around Patterson Park, Baltimore, MD
Starting and ending at Pulaski Memorial (corner of Linwood and Eastern Avenues)
A USATF Sanctioned Event
Peroxisomal Biogenesis Disorder (PBD) is a virtually unknown spectrum disorder that affects 1 in 50,000 children, and is extremely devastating to a family. Many children affected with the disorder, like Ilan, do not live past the first years of life. Nearly all affected children that do live past the first years are both hearing and visually impaired, and require special medical attention throughout the course of their life for feeding, mobility, and communication. The Global Foundation for Peroxisomal Disorders (http://www.thegfpd.org) is a parent-led 501(c)(3) public charity committed to funding research to develop a greater understanding of PBD, and to provide support to families affected by PBD. All proceeds from the Ilan-a-thon will benefit The Global Foundation for Peroxisomal Disorders.
Last year's first annual Ilan-a-thon had >380 participants and raised over $23,000 for the GFPD. This money was used to support the first GFPD grant cycle, which helped fund scientific research projects in the field of PBD. One of the grants that we funded was awarded to a researcher at the Kennedy Krieger Institute! Your participation in this year's event will continue to support the important work that takes place here in Baltimore and at other institutions that specialize in PBD.
Check out our 2013 promo PSA generously produced by Butler Film:
Co-chairs: Mousumi Bose, Andrew Betzer, Mahua Bose, and Lynda Meier
Committee Members: Suhel Srivastava, Christie Moore, Joseph Fitzpatrick, Julie Robertson, Patrice Craig, Jessica Dowches-Wheeler, Debamitra Ray Koshy
Contact: Mousumi Bose email@example.com
Race Management Services provided by: