ILAN-A-THON 
A Fun Run Benefiting Children with Peroxisomal Disorders

Please join us Saturday, May 17 at Alexander's Tavern in Fell's Point (http://www.alexanderstavern.com/) from 5-7pm for an Ilan-a-thon benefit happy hour! 15% of all sales will go to the Ilan-a-thon!

T-shirt guarantee with registration ends May 5th! Register or sponsor the Ilan-a-thon now by clicking "Buy Ticket"!






Ilan and his family






Learn about the GFPD here!










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Date:
June 8, 2014
(Registration opens February 14)

Time:
7:45 am On-site registration/Check-in/Packet pick-up opens
8:45 am Announcements and Introduction of Race Honoree Livi Menard
9:00 am Race begins

Location:
5K Loop Around Patterson Park, Baltimore, MD
Starting and ending at Pulaski Memorial (corner of Linwood and Eastern Avenues)
A USATF Sanctioned Event


Hotel information:
A block of rooms have been reserved from Friday June 6 through Saturday June 7 at the locations below. Reserve your rooms no later than May 5 to get the block rate:

Hilton Baltimore
401 West Pratt Street
Baltimore, MD 21202
2.5 miles from Patterson Park
$149/night (does not include parking)
Click here to complete your reservation

Hunt Valley Inn
245 Shawan Road
Hunt Valley, MD 21031
18.5 miles from Patterson Park
$109/night (parking included)
Click here and go to "Reservations" to complete your reservation

The Cause:

Peroxisomal Biogenesis Disorder (PBD) is a virtually unknown spectrum disorder that affects 1 in 50,000 children, and is extremely devastating to a family. Many children affected with the disorder, like Ilan, do not live past the first years of life. Nearly all affected children that do live past the first years are both hearing and visually impaired, and require special medical attention throughout the course of their life for feeding, mobility, and communication. The Global Foundation for Peroxisomal Disorders (
http://www.thegfpd.org)  is a parent-led 501(c)(3) public charity committed to funding research to develop a greater understanding of PBD, and to provide support to families affected by PBD. All proceeds from the Ilan-a-thon will benefit The Global Foundation for Peroxisomal Disorders.

Last year's first annual Ilan-a-thon had >380 participants and raised over $23,000 for the GFPD. This money was used to support the first GFPD grant cycle, which helped fund scientific research projects in the field of PBD. One of the grants that we funded was awarded to a researcher at the Kennedy Krieger Institute! Your participation in this year's event will continue to support the important work that takes place here in Baltimore and at other institutions that specialize in PBD.

Check out our promo PSA generously produced by Butler Film:




Planning Committee:
Co-chairs: Mousumi Bose, Andrew Betzer, Mahua Bose, and Lynda Meier
Committee Members: Suhel Srivastava, Christie Moore, Joseph Fitzpatrick, Julie Robertson, Patrice Craig, Jessica Dowches-Wheeler, Debamitra Ray Koshy


Contact: Mousumi Bose ilanathon@gmail.com


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